Estimert insidens av kronisk utmattelsessyndrom/myalgisk encefalopati i Norge mellom 2016-2018 : en registerstudie

Geir Haakon Hilland; Kjartan Sarheim Anthun

doi:10.7557/14.6535

Authors

Geir Haakon Hilland SINTEF
Kjartan Sarheim Anthun Sintef Helse, avdeling for helsetjenesteforskning https://orcid.org/0000-0002-2142-2742

DOI:

https://doi.org/10.7557/14.6535

Keywords:

Myalgisk encefalopati/kronisk utmattelsessyndrom, registerdata, insidensrate, forekomst, diagnostisering, ME/CFS, ME, CFS

Abstract

Kronisk utmattelsessyndrom/myalgisk encefalopati (ME/CFS) er en kompleks og kronisk sykdom som er assosiert med en betydelig reduksjon i livskvalitet for de rammede. I denne studien estimerer vi insidensraten for ME/CFS i den norske befolkningen mellom 2016 og 2018. Data om pasienter er innsamlet fra Norsk pasientregister (NPR). Populasjonen er definert av alle pasienter behandlet i spesialisthelsetjenesten som har blitt diagnostisert med ME/CFS mellom 2016-2018. Vi finner at 5 556 nye pasienter ble diagnostisert med ME/CFS i perioden 2016-2018. Insidensraten var på 36.1 per 100 000 person-år. Av disse var 4 347 kvinner, som betyr at insidensraten for kvinner relativt til menn var 3.7. Vi finner at forekomsten av ME/CFS varierer med alder, og vi finner to alderstopper i gruppene 15-19 og 35-39 år. Vi finner høyere insidens for den samlede populasjonen, sammenlignet med tidligere norsk forskning.

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Author Biographies

Geir Haakon Hilland, SINTEF

Forsker hos Sintef Digital, avdeling for Helsetjenesteforskning

Kjartan Sarheim Anthun, Sintef Helse, avdeling for helsetjenesteforskning

Seniorforsker hos Sintef Digital, avdeling for Helsetjenesteforskning

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