Alopecia areata, hair loss, and its influence on everyday life
DOI:
https://doi.org/10.7557/14.7420Keywords:
Alopecia areata (AA), Everyday life , Health, Hair loss, Hair replacement, Self-realizationAbstract
Hair loss affects those living with the skin condition alopecia areata (AA). The study aimed to describe how hair loss affects the everyday life of people living with AA. The research design was qualitative with an inductive approach. Data were written narratives collected in a quantitative study through three open-ended questions. The participants (in total 246) living with AA were at least 18 years old. Content analysis was used to analyze data. The results were described in four themes: 1) fear of hair replacement falling off the head, 2) incapability to perform professional work, 3) tolerance of a lack of understanding, and 4) acceptance of everyday life with hair loss. The conclusion is that everyday life will not necessarily be the same as before. Life is lived with a visible physical change in appearance, nevertheless, opportunities are realized in everyday life with hair loss, but their life is lived differently.
KeywordsAlopecia areata (AA), everyday life, health, hair loss, hair replacement, self-realization
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Burns, L., Mesinkovska, N., Kranz, D., Ellison, A., & Senna, M. (2020). Cumulative life course impairment of alopecia areata. International Journal of Trichology, 12(5), 197-204. https://doi.org/10.4103/ijt.ijt_99_20
Caro, S. R. (2022). Alopecia Areata: Exploring the Literature. Journal of the Dermatology Nurses' Association, 14(5). https://journals.lww.com/jdnaonline/fulltext/2022/09000/alopecia_areata__exploring_the_literature.4.aspx
Dahlberg, K., Dahlberg, H., & Moodley, D. (2008). Reflective Life-World Research. Studentlitteratur.
Davey, L.C & Jenkinson, E. (2019). Living with alopecia areata: an online qualitative survey study. British Journal of Dermatology, 180(6), 1377-1389. https://doi.org/10.1111/bjd.17463
Davis, D.S. & Callender, V.D. (2018). Review of quality of life studies in women with alopecia. International Journal of Women’s Dermatology. 2018 Jan 9;4(1):18-22. https://doi.org/10.1016/j.ijwd.2017.11.007.
Elo, S., & Kyngäs, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107-115. https://doi.org/10.1111/j.1365-2648.2007.04569.x
Fine, C. (2010). The Delusions of Gender. W.W. Norton.
Gelhorn, H. L., Cutts, K., Edson-Heredia, E., Wright, P., Delozier, A., Shapiro, J., Senna, M., & Tosti, A. (2022). The Relationship Between Patient-Reported Severity of Hair Loss and Health-Related Quality of Life and Treatment Patterns Among Patients with Alopecia Areata. Dermatology and Therapy, 12(4), 989-997. https://doi.org/10.1007/s13555-022-00702-4
Gilbert, S., & Thompson, J. K. (2002). Body shame in childhood and adolescence: Relations to general psychological functioning and eating disorders. I P. Gilbert. & J. Miles (Red.), I Body shame: Conceptualisation, research, and treatment (pp. 55-74). Brunner-Routledge.
Gilhar, A., Etzioni, A., & Paus, R. (2012). Alopecia Areata. New England Journal of Medicin, 366(16), 1515-1525. https://doi.org/10.1056/NEJMra1103442
Goffman, E. (1986). Stigma: notes on the management of spoiled identity. Touchstone. Stigma: Notes on the Management of Spoiled Identity: EBSCOhost (uis.no)
Katara, P., Vlastos, D:D: & Theofilou, P. (2023). The lived experience of Women with Alopecia: A qualitative study investigating the psychological, social and emotional impact of Alocepia in a sample of Greek women. The Open Public Health Journal, 16, 1-8. https://doi.org/10.2174/0118749445265657230919075248
Lintzeri, D. A., Constantinou, A., Hillmann, K., Ghoreschi, K., Vogt, A., & Blume‐ Peytavi, U. (2022). Alopecia areata – Current understanding and management. Journal der Deutschen Dermatologichen Gesellshaft, 20(1), 59-90. https://doi.org/10.1111/ddg.14689
Macbeth, A. E., Holmes, S., Harries, M., Chiu, W. S., Tziotzios, C., de Lusignan, S., Messenger, A. G., & Thompson, A. R. (2022). The associated burden of mental health conditions in alopecia areata: a population‐based study in UK primary care*. British Journal of Dermatology, 187(1), 73-81. https://doi.org/10.1111/bjd.21055
Maslow, A. H. (1943). A Theory of Human Motivation. Psychological Review, 50(4), 370-396. https://doi.org/http://dx.doi.org/10.1037/h0054346
Mesinkovska, N., Craiglow, B., Ball, S. G., Morrow, P., Smith, S. G., Pierce, E., & Shapiro, J. (2023). The Invisible Impact of a Visible Disease: Psychosocial Impact of Alopecia Areata. Dermatology and Therapy, 13(7), 1503-1515. https://doi.org/10.1007/s13555-023-00941-z
Mesinkovska, N., King, B., Mirmirani, P., Ko, J., & Cassella, J. (2020). Burden of Illness in Alopecia Areata: A Cross-Sectional Online Survey Study. Journal of Investigative Dermatology Symposium Proceedings, 20(1), S62-S68. https://doi.org/10.1016/j.jisp.2020.05.007
Molander, A., & Terum, L. (2008). Profesjonsstudier – en introduksjon. I A. Molander & L. Terum (Red.),i Profesjonsstudier (pp. 14-23). Universitetsforlaget.
NAV - Arbeids- og velferdsetaten. (2011). Rundskriv til ftrl § 10-7: Rundskriv om refusjon av reiseutgifter ved brukers reise i henhold til folketrygdloven kapittel 10. R10-07, https://lovdata.no/nav/rundskriv/r10-07
NAV - Arbeids- og velferdsetaten. (2024). Parykk. https://www.nav.no/parykk
Park, J., Kim, D.-W., Park, S.-K., Yun, S.-K., & Kim, H.-U. (2018). Role of Hair Prostheses (Wigs) in Patients with Severe Alopecia Areata. Ann Dermatol, 30(4), 505-507. https://doi.org/10.5021/ad.2018.30.4.505
Parse, R. R. (1981). Man-living-health: A Theory of Nursing. Delmar.
Pinto, D., Sorbellini, E., Marzani, B., Rucco, M., Giuliani, G., & Rinaldi, F. (2019). Scalp bacterial shift in Alopecia areata. PLoS One, 14(4), e0215206-e0215206. https://doi.org/10.1371/journal.pone.0215206
Polit, D. F., & Beck, C. T. (2017). Essentials of Nursing Research: Appraising Evidence for Nursing Practice (9th ed.). Wolters Kluwer Health.
Rose, N. R., & Mackay, I. R. (2014). Autoimmune Disease: The Consequence of Disturbed Homeostasis. I N. R. Rose & I. R. Mackay (Red.), The Autoimmune Diseases (Fifth Edition) (pp. 3-9). Academic Press. https://doi.org/https://doi.org/10.1016/B978-0-12-384929-8.00001-0
Saed, S., Ibrahim, O., & Bergfeld, W. F. (2016). Hair camouflage: A comprehensive review. International Journal of Women's Dermatology, 2(4), 122-127. https://doi.org/https://doi.org/10.1016/j.ijwd.2016.09.002
Schmidt, S., Fischer, T. W., Chren, M. M., Strauss, B. M., & Elsner, P. (2001). Strategies of coping and quality of life in women with alopecia. British Journal of Dermatology, 144(5), 1038-1043. https://doi.org/10.1046/j.1365-2133.2001.04195.x
Taylor, C. (1999). Philosophy and the Human Sciences. Philosophical Papers 2. University Press.
Villasante Fricke, A.C. & Miteva, M. (2015). Epidemiology and burden of alopecia areata: a systematic review. Clinical, Cosmetic and Investigational Dermatology, 8, 397-403. https://doi.org/10.2147/CCID.S53985
Welsh, N., & Guy, A. (2009). The lived experience of alopecia areata: A qualitative study. Body Image, 6(3), 194-200. https://doi.org/10.1016/j.bodyim.2009.03.004
Zahavi, D. (2007). Fænomenologi. Roskilde Universitetsforlag.
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