Existential crisis and the power of love in a family affected by dementia

– a sister's experiences

Authors

DOI:

https://doi.org/10.7557/14.7610

Keywords:

dementia, care, brother and sister, existential crisis, love, ethics

Abstract

The essay sheds light on existential crisis and love within a family affected by dementia, viewed from a sister's perspective. Through examples, it highlights family dynamics such as powerlessness, disappointment, and grief. These relational and psychological dynamics occur «beside» the person with dementia and are identity-altering, potentially influencing roles and values within the family. The essay incorporates reflections on love and vulnerability from theologian and philosopher Knud Ejler Løgstrup and nurse and philosopher Kari Martinsen. It points out how these phenomena are fundamental prerequisites for people to relate to one another. Such insights can serve as a driving force for existential serenity in a world filled with uncertainty and chaos for those close to people with dementia. By balancing perception and understanding and focusing on the ethical demand, the essay suggests that one can find spiritual guidance and strength to navigate challenging times.

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Author Biographies

Janne Brammer Damsgaard, Aarhus University

Department of Public Health, Nursing, PhD, MSc, RN, external lecturer

Monica Evelyn Kvande, Lovisenberg diakonale høgskole

PhD, MSc, RN, associate professor

Charlotte Delmar, Aarhus University

Health, Department of Public Health, Nursing, PhD, MSc, RN, professor, FAAN

Jette Lauritzen, VIA University College

PhD, MSc, MScHA, CRNA, RN, senior lecturer

References

Damsgaard, J., Thybo, P., Raksmani, N. l. C., & Brinkmann, S. (2024). Berørt og bevæget: At navigere livets opgaver med empati. En ikke guide. Sygeplejevidenskab.dk. https://doi.org/https://doi.org/10.62680/FA0924

Damsgaard, J. B., Lauritzen, J., Delmar, C., & Kvande, M. E. (2023). Beyond loss: An essay about presence and sparkling moments based on observations from life coexisting with a person living with dementia. Nursing Philosophy, e12425-e12425. https://doi.org/10.1111/nup.12425

Damsgaard, J. B., Lauritzen, J., Delmar, C., & Kvande, M. E. (2024). Eksistentiel hjemkomst: Et essay baseret på en datters observationer fra hverdagslivet med en mor berørt af demens. Tidsskrift for psykisk helsearbeid, 21(3), 204-214. https://doi.org/10.18261/tph.21.3.2

Kokorelias, K. M., Rittenberg, N., Law, A., Wan, N. T. C., Machon, J., Arfeen, Y., & Cameron, J. I. (2022). Brothers and sisters sharing in the care of a parent with dementia. Dementia (London, England), 21(3), 765-780. https://doi.org/10.1177/14713012211053970

Lee, Y., Xu, L., Kim, B. J., & Chen, L. (2020). Leisure activity, gender and depressive symptoms among dementia caregivers: findings from the REACH II. Aging & Mental Health, 24(11), 1886-1893. https://doi.org/10.1080/13607863.2019.1660853

Luichies, I., Goossensen, A., & van der Meide, H. (2021). Normative tensions in filial caring for a mother with dementia: A narrative perspective. Dementia (London, England), 14713012211014003-14713012211014003. https://doi.org/10.1177/14713012211014003

Løgstrup, K. E. (1956). Den etiske fordring (2 ed.). Nordisk forlag A/S.

Løgstrup, K. E. (1976). Kunst og erkendelse (2. ed.). Gyldendal.

Løgstrup, K. E. (1987). Solidaritet og kærlighed (2 ed.). Gyldendal.

Martinsen, K. (2000). Øyet og kallet. Fagboklaget.

Martinsen, K. (2012). Løgstrup & Sygeplejen. Forfatteren og Forlaget Klim.

Perry, J. (2004). Daughters Giving Care to Mothers Who Have Dementia: Mastering the 3 R’s of (Re)Calling, (Re)Learning, and (Re)Adjusting. Journal of family nursing, 10(1), 50-69. https://doi.org/10.1177/1074840703261063

Poisson, V. O., Poulos, R. G., Withall, A. L., Reilly, A., Emerson, L., & O’Connor, C. M. C. (2023). A mixed method study exploring gender differences in dementia caregiving. Dementia (London, England), 22(8), 1862-1885. https://doi.org/10.1177/14713012231201595

Ricoeur, P. (1991). Life in quest of narrative. In D. Wood (Ed.), On Paul Ricoeur. Narrative and Interpretation. Routledge.

Romero-Moreno, R., Losada, A., Marquez, M., Laidlaw, K., Fernandez-Fernandez, V., Nogales-Gonzalez, C., & Lopez, J. (2014). Leisure, Gender, and Kinship in Dementia Caregiving: Psychological Vulnerability of Caregiving Daughters With Feelings of Guilt. The journals of gerontology. Series B, Psychological sciences and social sciences, 69(4), 502-513. https://doi.org/10.1093/geronb/gbt027

Smith, G., & Rodham, K. (2022). Supporting and sustaining care at home: Experiences of adult daughters who support a parent with dementia to remain in their own home. Health & Social care in the community, 30(1), 81-90. https://doi.org/10.1111/hsc.13373

Tatangelo, G., McCabe, M., Macleod, A., & Konis, A. (2018). I just can't please them all and stay sane: Adult child caregivers’ experiences of family dynamics in care‐giving for a parent with dementia in Australia. Health & Social care in the community, 26(3), e370-e377. https://doi.org/10.1111/hsc.12534

Vevatne, K. (2023). Eldreomsorgens etikk. Noen betraktninger knyttet til Søren Kierkegaard. In H. Alvsvåg & I. Hunskår (Eds.), Fra ‘Nødvendige omveier’ til en dag med ‘Langsomme pulsslag’. VID Rapport. VID vitenskapelige høgskole.

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Published

2025-02-20

How to Cite

Damsgaard, J. B., Kvande, M. E., Delmar, C., & Lauritzen, J. (2025). Existential crisis and the power of love in a family affected by dementia: – a sister’s experiences. Nordisk Tidsskrift for Helseforskning, 21(1). https://doi.org/10.7557/14.7610

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Refereebedømte essays